New Cycle of Maintenance

Hello everyone!

Thank you for following our updates, for your many prayers, and loads of support. So thankful to my Lord Jesus Christ for the love and care shown to me through His people and through His providence.

This past Tuesday (2/19/2019) I started a new cycle of maintenance chemotherapy. So far so good, and we rejoice that I am still in remission (as of the last bone marrow biopsy done two weeks ago). Still praying for a donor to begin the transplant process, so please continue to partner with us and go before the Lord. I am thankful for the quality of life I am able to still live while on this treatment: to be a help and support for my beautiful and lovely wife, a teacher and shepherd at my church, and as a support, in person or online, to those who are also suffering.

May the Lord bless you and keep you!

  • Please pray for my wife and I to continue in our love and obedience to the Lord. He is our everything! Cancer is but a refining and purifying fire delivered by His gracious, righteous, wise hands. May He continue to sanctify and mold us into Him.
  • Please pray that I will be able to apply and appeal successfully to the State for long-term disability.
  • Please pray for a donor and full recovery from my leukemia (ALL).

SDG.

-Jorge

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Delayed

Hello all,

Once again, thank you for your prayers and support. May the Lord bless you!

My blood count has dropped below the minimum requirement to start my next cycle of maintenance chemotherapy. I will have to wait one more week (with a blood test this Friday) to give sufficient time for my body to recover and resume treatment.

My full-results from my bone-marrow biopsy are in: no trace of leukemia! I am still in remission and my wife and I are so thankful to the Lord and for your prayers that have sustained us. Still searching for a donor, but in the meantime it is a comfort to know my treatment is effective.

Please pray for a full donor and pray that the Lord will continue to grow us in His grace, in knowledge and love for our Lord Jesus.

SDG.

-Jorge

Living Life

Hello everyone,

Thank you for your prayers and your support. May the Lord continue to bless you and may He always impress upon me the need to keep you all in prayer as well.

At the end of last year, I resumed what is called a maintenance treatment of chemotherapy. My understanding is that with this treatment I am able to take oral medication and apart from a few IV infusions (which require me to make the trip to COH), can remain at home and active. The last bone marrow biopsy showed I was still in remission, and so I am very thankful to the Lord for His grace and your prayers.

This treatment plan can go as long as 2-3 years. So far it has proved effective to keep me in remission, and for that I am very thankful. However, a stem-cell/bone marrow transplant is still being sought and a donor is still being searched forThis procedure is the only “cure” for my leukemia.

So, as long as we are still searching for a donor, I will continue to be on this treatment. Thankfully I can function and it is not as hard on my body as the past treatments have been. Some patients have even been able to resume full-time work on this treatment, and apart from some days of fatigue and nausea, I am able to essentially “live my life”, as my NP recommended I do. So that is what I plan to do. Though, there are some difficulties.

Having cancer has in some sense felt like a “pause” on our lives. It has been frustrating, and a very heavy trial. It has proved difficult for my wife and I to plan long-term or broadcast the next stages of our lives because of my cancer. We recognize that things can go south pretty quickly. We are thankful for the gospel of our Lord Jesus Christ, for His righteousness which covers us completely, and has given us the peace and contentment this life can never give. It is only the hope of the gospel that can truly sustain God’s children.

Once again, thank you for your prayers. Please pray for my wife and I to continue trusting the Lord. Pray for a donor, and full healing, if it be His will for us.

SDG.

-Jorge

 

Chemo on Hold

Hello everyone!

Thank you for your prayers and for your financial support. May the Lord continue to bless you and grant you peace in this turbulent age.

Recently I have been able to enjoy more time at home being on oral chemotherapy. It has allowed me to take medication at home and has given us a nice break from having to drive to COH (which is about 1 hour away).

My last doctor’s appointment I found out that my blood count is low, and so what that means is that we must put all chemo on hold. The chemo is working to keep the cancer in remission, but it also means I must recover enough to continue receiving chemotherapy. We will just wait a couple of days and see where things are at. This Friday I will have another bone marrow biopsy to see where things are.

Please continue to pray for a full donor. I am on maintenance chemo which can last up to 2 years. Ideally, we would not want to wait that long but the Lord has everything under control, and everything is in His time. Thank you all who have gone to bethematch.org to get tested.

SDG.

-Jorge

In and Out of the Hospital

Hello all!

Thank you for keeping up with us and this blog. My wife and I are so grateful for your prayers and support. God bless you and my the Lord protect and keep you!

So last Monday night I got a fever of 102 F. As protocol, we were told by my doctor and his staff that if I ever got over 100 F I should call the on-call triage nurse. Well, because of my recent low WBC count, they thought it best for me to check in to the hospital for treatment and observation.

One week later, I am finally going home. They still don’t know what caused the infection but they were able to give me a round of antibiotics and raise my WBC count enough that it helped me stay fever free for a couple of days. My doctor was satisfied with the results and gave the order to release me today.

This is pretty par for the course. Infections can be quite common with people who are immuno-suppressed. This has helped to teach us and to undergird the importance of hygiene and taking precautions like wearing a mask, washing hands, and using hand sanitizer.

Thanking the Lord! I am still waiting to start the next round of chemo. Please pray we can begin and move towards a better treatment option, such as a transplant. Pray for full match donors and please pray for my wife and I to continue to trust and obey our Lord Jesus.

SDG.

-Jorge

Chemo Hold

Hello everyone.

It has been a couple of months since my last update. That has been mostly due to the unchanging nature of the chemo schedule I was on.

I was supposed to start a new round of chemo this past Tuesday, however, it has been put on hold due to my low WBC count. There is a certain level my WBC count has to be before starting specific treatments and I have not recovered enough from the last round to start the new.

This happens sometimes. My doctor has decided to give me a couple of more days to recover and hopefully we can start the treatment next week.

Thank you so much for your prayers and support. Our Lord has been so gracious to us, and continues to be so in spite of our struggles to trust Him and be obedient in this trial. He is our Rock.

Please continue to pray for us!

SDG.

-Jorge

Continuing Chemo

Hello everyone!

Thank you for reading my updates and for your prayers and support. May the Lord bless you!

I am continuing with outpatient chemotherapy infusions and so far the side effects have been mild. The worst of it is a bit of fatigue and nausea, but thankful that those do not last too long. This current plan I am on continues till the end of July which will then lead to another cycle of maintenance chemo to keep things where they are.

My doctor is happy with my blood levels and so far I have not needed any blood products or transfusions.

My liver enzymes have spiked again and so I am trying to drink more water and be more active. Please pray they will start to go back down again.

The word from my doctor and NP is that my other siblings who got tested, along with my father, were not a match to be stem-cell donors. It’s a bit disappointing, but we are glad we know. My wife and I are trusting in the Lord Our Sovereign King, and we are continuing to search the national registry. So far, my oldest sibling is still the best candidate as a half-match, but it is not ideal and my oncologist will continue to search for a full-match.

Thank you for your prayers. Please continue to pray for my wife and I. May we continue to trust the Lord Jesus! Pray for future treatments and procedures to go well. And please pray for a full donor match. 🙂

SDG.

-Jorge